Celine Dion Opens Up About Her Health Battle in Emotional Documentary: ‘It’s Been a Struggle’


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Celine Dion is ready to talk about the personal health battle that has left her unable to perform. In a preview for Prime Video’s new documentary I Am: Celine Dion released Thursday, May 23, the Grammy winner opened up about her Stiff Person Syndrome diagnosis.

“I’ve been diagnosed with a very rare neurological disorder and I wasn’t ready to say anything before,” Celine, 56, said. “But I’m ready now.”

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According to Johns Hopkins University, Stiff Person Syndrome most commonly causes muscle stiffness and painful spasms that come and go and can worsen over time. However, some people experience other symptoms such as double vision or slurred speech.

Currently, there is no treatment but working with a specialist and maintaining symptom control can make it easier to live with the condition.

As a result of her diagnosis, Celine had to cancel her Courage world tour in May 2023. In the trailer for her upcoming documentary, the “My Heart Will Go On” singer shared a glimpse into how difficult it was to stop performing.

“When you record, it sounds great. But when you go on stage, it will be greater,” she said. “It’s not hard to do a show, you know? It’s hard to cancel a show.”

Celine continued, “My voice is the conductor of my life. When your voice brings you joy, you’re the best of yourself. I need my instrument.”

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Celine Dion is ready to talk about the personal health battle that has left her unable to perform. In a preview for Prime Video’s new documentary I Am: Celine Dion released Thursday, May 23, the Grammy winner opened up about her Stiff Person Syndrome diagnosis.

“I’ve been diagnosed with a very rare neurological disorder and I wasn’t ready to say anything before,” Celine, 56, said. “But I’m ready now.”

According to Johns Hopkins University, Stiff Person Syndrome most commonly causes muscle stiffness and painful spasms that come and go and can worsen over time. However, some people experience other symptoms such as double vision or slurred speech.

Currently, there is no treatment but working with a specialist and maintaining symptom control can make it easier to live with the condition.

As a result of her diagnosis, Celine had to cancel her Courage world tour in May 2023. In the trailer for her upcoming documentary, the “My Heart Will Go On” singer shared a glimpse into how difficult it was to stop performing.

“When you record, it sounds great. But when you go on stage, it will be greater,” she said. “It’s not hard to do a show, you know? It’s hard to cancel a show.”

Celine continued, “My voice is the conductor of my life. When your voice brings you joy, you’re the best of yourself. I need my instrument.”

Author: Clara
"Greetings! I am a media graduate with a diverse background in the news industry. From working as a reporter to producing content, I have a well-rounded understanding of the field and a drive to stay at the forefront of the industry." When I'm not writing content, I'm Playing and enjoying with my Kids.

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