Céline Dion, the legendary voice behind “My Heart Will Go On,” is continuing her battle with Stiff-Person Syndrome — a rare and debilitating neurological disorder that has forced her to step back from performing. In May 2023, the singer canceled her Courage world tour due to complications from the illness, calling it a “tremendous disappointment.” She told fans in a heartfelt statement at the time, “It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again.”
Concern for the Canadian superstar remains high. In mid-2025, false rumors claiming that Dion had died began circulating online, prompting fans and media outlets to fact-check the claims. Representatives for the singer quickly confirmed she was alive, urging people to be mindful about spreading misinformation.
Celine’s legacy spans decades, with five Grammy Awards, a record-breaking Las Vegas residency, and international fame cementing her place in music history. Her last full concert performance was in July 2019 at Hyde Park in London. Since revealing her diagnosis in December 2022, she’s kept fans updated through statements.
Oh yeah, Céline Dion is healing and so is nature pic.twitter.com/TA7F8P2uwY
— Miguel 🇨🇴 (@elasticdijon) March 22, 2024
Despite her health challenges, Céline made two surprise public appearances in 2024: presenting Album of the Year to Taylor Swift at the Grammy Awards, and performing at the opening ceremony of the Paris Olympics. In March 2026, she announced her comeback Paris concerts, which will begin in September 2026.
Here’s everything to know about Celine Dion’s condition, how she’s doing today, and what’s next.
Celine shocked the world with somber news in 2022 when she revealed her Stiff Person Syndrome (SPS) diagnosis with an emotional video across social media, including Instagram. The rare condition, which often affects around “about one or two in a million people,” is known to cause a series of neurological health issues, per John Hopkins Medicine.
“I’m sorry it’s taken me so long to reach out to you,” Celine said in an Instagram video at the time. “I miss you all so much and I can’t wait to be on stage talking to you in person. As you know, I’ve always been an open book and I wasn’t ready to say anything before. But I’m ready now. I’ve been dealing with problems with my health for a long time and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through. Recently, I’ve been diagnosed with a very rare neurological disorder called stiff person syndrome, which affects something like one in a million people.”
